We meet you where you are — no matter what stage of your journey.

Our community is a space for people living with endocrine and endocrine-related conditions to learn, connect, and grow – at your own pace, in your own way. With resources from experts and people with lived experience, you’ll find the tools and confidence to make meaningful change in your care, one moment at a time. Because advocacy happens in the everyday moments—in a conversation with your doctor, a question you finally ask, or a story you share with someone who gets it.

We’re building a community together: one that puts patients at the center, strengthens awareness, and improves access to care.

Join Us

Michell Acromegaly Sitting
Michelle, living with acromegaly

Living with Acromegaly?

Gain insights and track how well your symptoms are being managed with the Acromegaly Symptom Diary mobile app. Join the Everyday Advocacy community and get early access before the app is released to the public.

Get The App

Traci, living with acromegaly

Traci Acromegaly
Amanda and Daughter

Amanda and her daughter, living with congenital adrenal hyperplasia

You've been doing the hard work. We're here to help.

Living with an endocrine condition can be a full-time job. You’re managing symptoms, tracking appointments, and making decisions, all of which can be overwhelming. We’re here to help you identify and address those “everyday” challenges so that you can take the lead in your care and regain the moments in your life that matter most.

What You Can Expect

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Tools and resources that put you in the driver's seat

Every doctor’s appointment is an opportunity, and the right preparation can change the conversation. These resources help you organize what matters most, so you can walk in confidently, speak up for yourself, and leave with a clearer sense of your path forward.

Resources

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Information that actually makes sense

Medical information can be confusing. We’ll do our best to minimize the jargon and information overload. Just clear, practical education about your endocrine condition and how to navigate the healthcare system so when the next decision comes up, you’re ready for it.

Patient Stories

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In-person workshops

Focused, practical group sessions provide a space to learn more about your condition, craft and share your personal story to create the change you want, and form lasting connections with peers and leaders who understand what you're up against and can't wait to celebrate your wins.

Upcoming Workshops

Digital Learning Opportunities and Resources

Stay tuned for a variety of digital learning opportunities, such as webinars and newsletters.

Learn More

Stay in the Loop

Sign up to get updates on resources, upcoming meetings, and new ways to get involved — on your schedule, at your pace.

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